Wednesday, July 31, 2013

Update is a little late for this week sorry ya'll Monday was a long day we were down in Danville about 10am and didn't leave until about 4. The chemo itself took only about 30 minutes but when my labs came back they wanted to give me some more stuff for clotting and blood thinning which took all day to be sent from the pharmacy. Literally the most annoying thing to do is sit there and just wait for something that doesn't take that long at all to administer. We did find out that along with that MLL gene I have a distinct and rare form of ALL that is very similar to Burkitt's Lymphoma which makes it just a bit different to treat. We are still going to treat it as planned at least in this induction phase. The doctor seems a little more optimistic about this than the other gene thinking this might actually help but there is know way to tell. There is still allot to go before we do know to much more. Burkitts Lymphoma is a VERY aggressive Cancer that grows very quickly and explains why 6 months ago I had normal blood counts. what we want now is to make sure that the Chemo has completely wiped out any cancer cells in my bone marrow that is the first step in the remission process of things. Only time will tell with this one as everything becomes about in the next few weeks. Chemo Symptoms are not bad (yet) the most I have noticed is the numbness in the finger tips which is tolerable. The medicine Prednisone (not a chemo drug its a normal steroid) is complete hell. This is not an exaggeration. All I want to do is eat. My heart rate and blood pressure are all out of whack. My FACE LOOKS LIKE A BEACH BALL. long story short the steroid is the hell drug and I HATE IT. but otherwise all is good just hanging out driving mom nuts all the time and other than that Im doing pretty good. The PICC line in my arm comes out on the 12 and they will put the MEDI-PORT in my chest. They're going to also do the spinal tap and bone marrow Biopsy on that day get it all done in one shot. Baring any complications it should just be a long day but hopefully home the same day. Well all I'll update again with anything important when it comes up again sorry for the delay I have always been a procrastinator!

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